Krakow, April 7, 2025 – Each day is a fight for life. Every hour matters. Mikolaj Jerzak, just two years old, is suffering from one of the most severe and progressive genetic diseases – Duchenne muscular dystrophy (DMD). The diagnosis came as a crushing blow to his family, forcing his parents into a desperate race against time — a fight for hope, for strength, and above all, for the life of their beloved son.
DMD – A Silent and Merciless Sentence
Duchenne muscular dystrophy is a cruel disease. It gradually, and systematically, takes away a child’s ability to walk, speak, swallow, and ultimately breathe. Without effective treatment, the disease leads to a slow and painful death. Currently, the only hope for Mikolaj is access to an innovative gene therapy, available exclusively in the United States. Unfortunately, the cost of treatment exceeds 17 million PLN (approx. 4 million USD).
His parents – Natalia and Adrian – live each day in fear and heartbreak. “Our hearts are breaking as we begin to see the disease taking its toll on Mikolaj… This fundraiser is our only hope. Without it, we have no chance of saving his life,” they say.
👉 Donation link: www.siepomaga.pl/mikolaj-jerzak
Solidarity Beyond Borders – Support from Public Figures and Humanitarians
In response to the family’s urgent appeal, prominent public figures and human rights advocates have joined the campaign.
On April 7, 2025, a special meeting was held in Krakow, attended by:
- Prof. h.c. Rafal Marcin Wasik – Secretary General and World Chairman of the International Human Rights Commission (IHRC Corporation / Interpol Center USA),
- M.Sc. Ewelina Barbara Pawlowska – Ambassador at Large, Vice Secretary General and Head of the Department of Internal Affairs at IHRC,
- Piotr Marzec “Liroy” – IHRC Peace Ambassador,
- Kamil Zalewski – President of Juventus Academy Foundation Rzeszow.
Ambassador Liroy, known for his long-standing commitment to public service, signed jerseys for charity auctions and pledged his further support for the fundraising campaign.
“We cannot remain indifferent to the suffering of a child. Every minute counts for Mikolaj. Let’s show that together, we can do anything” Liroy stated during the event.
A Nationwide Call for Support
The fundraising campaign for Mikolaj is a race against time. The disease is progressing, and the child is losing vital functions. Gene therapy — currently only commercially available in the U.S. — is the only hope to stop this terminal illness. This is no longer just a dream — it is a matter of life and death.
Every donation, every share of the fundraiser link, brings Mikolaj closer to survival.
How Can You Help?
- Donate on the campaign page: siepomaga.pl/mikolaj-jerzak
- Share the link on social media, local groups, and community forums.
- Organize charity events, auctions, or community fundraisers.
- Offer in-kind or promotional support — every gesture makes a difference.
On behalf of Mikolaj’s family, volunteers, and all involved – thank you for extending a helping hand.
Reported:
Ewelina Barbara Pawlowska
Ambassador at Large
Vice Secretary General
Head of the Department of Internal Affairs at IHRC
